Brain Salad Surgery

Well, if I ever needed an illustration of what my life would be like without my Deep Brain Stimulation (DBS) set up, I had one yesterday.

And it wasn’t pretty.

But let’s start at the beginning.

Last week I got a call from The Functional Neurosurgery Department at The National Hospital For Neurology And Neurosurgery, Queen Square, London. They were calling to see if I’d be interested in helping them out with some tests. They are doing some research into the unwanted side effects of DBS, notably twitching or similar muscle movement in the lips, and the hand.

Of course I said yes.

It means a lot to help out, if only a small way, the team who have been so helpful to me.

A brief reminder about DBS. It involves implanting 2 electrodes deep into the brain, which are cabled to a battery and pulse generator implanted in the chest cavity. When properly set up, the pulse generator sends current to the electrodes  and the stimulation of the pathways in the Subthalamic Nucleus it causes are able in successful cases, to ease Parkinsonian symptoms.

Yesterday’s task, as I understand it was for the team to make some recordings of muscle activity with my DBS settings turned off and, then using one lead only (ie. one side of the brain) increase the amplitude in increments of one volt at a time. To capure this I had numerous electrodes stuck on my face my hands. Now, I’m no expert but it seemed these were connected to what looked like a 1970’s Moog synthesizer: a huge piece of equipment, favoured by Prog Rockers like Keith Emerson and Rick Wakeman. Which is not as daffy as it sounds if you think about it, the synthesizer’s job being to take white noise and shape it by altering its wave patterns and other parameters to create electrical impulses which can be converted to sound.

Robert Moog with Modular Synthesizer. It would fit on a credit card now.

Robert Moog with Modular Synthesizer. It would fit on a credit card now.

The equipment yesterday was doing pretty much the same thing, kind of in reverse picking up electrical impulses coming from my brain which have been shaped by the DBS settings and converting them to wave patterns (and presumably sound as well if required) which can be viewed on a computer, and recorded along with physiological changes in the patient, The brain, ably assisted by the implanted Impulse Generator under my collarbone, playing the role of synthesizer

We got going after a few teething problems which including getting the electrodes to give a clear read out. You’ll be pleased to hear that trying to solve this problem included turning the equipment off then turning it on again! Which was a strangely comforting thing to see.

Equipment for recording brain activity. You see what I mean?

Equipment for recording brain activity. You see what I mean?

As the tests progressed, I fairly soon went into an ‘off’ state characterised by lack of movement, and ridgidity . It is so difficult to describe what this is like. I am unable to move – even to shuffle back into the seat so I am comfortable. I can’t hold a cup of water, it has to be ‘fed’ to me. I am as helpless as a newborn baby. It doesn’t hurt as such, but it is extremely uncomfortable. This is what I would be like without the DBS. I would need constant care, would lose any Independence I enjoy, plus I would be having to take ever larger amounts of anti-Parkinson’s drugs. Drugs which have some scary side effects, which include hallucinations, impulse control disorders and dyskenesias (uncontrollable movements)

After about an hour and a half, the team had got some successful recordings, with twitching coming in around 6 – 7 volts. My settings were restored and I slowly come back to life, able to talk and smile again. Such sessions always leave me exhausted, but a measure of how far I’ve come in the 3 years since the op. Is that I made way back home on the rush hour tube, rather than take the cab the hospital offered me.

It really is remarkable, the difference DBS has made , and it is a technique which is constantly evolving. It is being used in the treatment of Cerebral Palsy, Tourette’s Syndrome, Depression and Migrane nowfor instance. For my money it represents the way forward in treating Parkinson’s in a cost effective way.
Sadly it has no effect on the tendency to compose or listen to Prog Rock.

 

The great H R Giger's sleeve design for ELP's 'Brain Salad Surgery'

The great H R Giger’s sleeve design for ELP’s ‘Brain Salad Surgery’

© Andy Daly 2014

Peter Hill

It is a matter of great regret that I never said a proper ‘Thank You’ to Peter Hill.

It was he, bless his large, round glasses who was responsible for the singlemost brilliant piece of teaching of my whole school career.
A bit of background: This happened in Rochdale, Lancashire.

Ah! Rochdale.If you’ve never been there, it’s a bit like … how can I describe it? … Imagine the Cotswolds and an artist’s watercolour pallette, full of greens in all their subtleties, an embarrassment of hues and tones: fresh, fragrant and soothing. Alongside it, the artist’s page and a peaceful, landscape, lovingly depicted but which is steadily succumbing to the leaking black which is seeping into it, courtesy of the artist’s son. Who, fancying a crack at a bit of painting of his own is happily grinding the brush into the disintegrating picture. He then paints his own fingers, the lamp black mixing nicely with the remnants of a peanut butter sandwich, which then also becomes incorporated into the pastoral scene… That’s what Rochdale is like.

Or at least it was in the ‘70s when I lived there and when Peter Hill, teacher and actor, cut a dash (as still does I am lead to believe) impeccably dressed as always, through the cobblestoned streets of nearby Whitworth.

I knew a bit about Peter Hill before I went to St. Wilfred’s Catholic Middle School where he taught. There were tales that went around about this mad English teacher who wildly over-pronounced certain vowels and consonants and had a ready willingness to threaten and use corporal punishment. My Dad (also a teacher, but not at the same school) had a few stories about him too, but advised me to tread with caution. He thought Mr. Hill an experienced and wily campaigner who could be a hard taskmaster and yet inspired great loyalty.

‘Trilly’ as he was affectionately known (Mr. Hill – Mister Hill – Mister ‘ill – Mistrill – Trilly: See?) was a regular cast member of the Whitworth Amateur and Musical Dramatic Society and a brilliant comic actor (something which he brought into his teaching incidentally) I still have very clear memories of him singing “I am the very model of a modern major general” and, it may have been the same production, an occasion when his false moustache and beard began to slip. With a series of matchless ad-libs he used it to great comic effect.

I adored him though, of course I didn’t tell a soul in school, particularly once I had reached St. Wilfred’s myself, and where, during my first year, for no apparent reason (I think I just got off on the ‘wrong foot’ with the place) I was a complete arse. He taught me Latin that year, but I just messed about. I didn’t give him a chance. I came bottom in the exam.

The following year, he taught me English. I was in one of his lessons, doodling away, as I often did, on the inside cover of my exercise book at a cartoon figure. I didn’t realise as I struggled with the hands of this wretched creature I was drawing that he was standing right behind me: ‘So THIS is what we do in our English lessons is it?’ He made me come out to the front. I was mortified. Ashen – faced, which you couldn’t see because I was blushing so much, I watched, eyes prickling with the hot tears welling up, but which I wouldn’t allow to fall, as he tore a page from my book, wrote something on it, folded it in half, and told me to go with it to the Library. I assumed I’d be met there by one of the senior staff to be given a serious punishment…I mean…getting sent out of a lesson.

‘Can I help you?’ The Librarian was a nun with a profile like an eagle. I dithered and looked around

‘Yes?…’ She was impatient. I thrust the piece of paper at her. She read it then told me to sit down.

After a few minutes, she returned with a book, set it on the table before me, opened it and laid the note alongside. This is what I saw…

Albrecht Durer ‘Praying Hands’ 1508

Underneath his written instruction to the Librarian it said:

“If you are going to draw hands in my lesson, you might at least get them right. Stay here and draw these until you know them back to front. Don’t move till I come to collect you.”

I never did get them right. But I’ve had a blast trying. So Peter, please accept my belated apologies.

…… Oh, and Thank You.

Postscript

Some four years after this was written I got a message which said that a relative of Mr Hill had stumbled across ‘Sitting Comfortably’ and had shown him this piece.

He was very keen to contact me and so I passed on my phone number. Sure enough about a week later I got a call one saturday morning. It was Peter Hill. We had a lovely conversation in which we remembered old times.

So I did get to thank him after all.

Peter Hill: Actor and Teacher

Peter Hill: Actor and Teacher 29.09.30 – 07.08.15 Requiescat In Pace

 © Andy Daly 2010

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BBC South East news 7th November 2013

Mercianreg

UK soldier killled in Afghan suicide attack named

A British soldier killed in Afghanistan has been named as Warrant Officer class 2 David Philip Green. The 42-year-old, from Dagenham, East London, was part of the 3rd Battalion The Mercian Regiment.

The Ministry of Defence said he died in a suicide attack on the final day of an operation to disrupt insurgents in the Kamparack area, 25 miles (40km) north-east of Lashkar Gah in Helmand.

His widow Gillian said: “David will always be the centre of my life, he will be remembered as a doting father, loving husband and a true professional soldier.”

He had two sons, aged seven and five.

SONY DSCLancaster Guardian 15th February 1915

Lancaster Soldier Killed In Action

Corporal Bernard Daly 35, serving with “B” Coy. 2nd Bn King’s Shropshire Light Infantry of 13 Bradshaw St, Lancaster died on Friday, 12 February, in the trenches of the St Eloi sector, Ypres.
His commanding officer, Captain Skinner described Corporal Daly, husband of Jane Frances Daly and father of two as a model soldier who had just completed 20 years service. He was well-liked by all the men and was a keen hockey player. He was shot in the head by a sniper’s bullet and would have died instantly.

By a cruel twist of fate, the post that brought the family this devastating news also contained a letter from Corporal Daly especially for his young son on the occasion of his birthday.

My Great Grandfather

The Company I Keep

Muhammad Ali, Billy Connoly, Robin Williams, Bob Hoskins, Linda Ronstadt, Maurice White,

Y' nooo Big Yin. Shaken not stired

Y’ nooo Big Yin. Shaken not stired

Michael J Fox, Johnny Cash, Roger Bannister, Martha Johnson, Ray Kennedy, Margaret Bourke-White, Alec Issigonis,  Mervyn Peake, A. J. P. Taylor , Terry-Thomas, John Betjeman, Charles Schulz.

It would be quite some party.

© Andy Daly 2014